Lets Catch Up...

In 2010 Jayci did not have any surgeries or any hospitalizations. It was a banner year that's for sure. Along with having a hospital free year (with the exception of monthly doctors visits) Jayci was granted a wish from the Make-A-Wish Foundation. She wished to have a birthday dinner with the Princesses. And so we embarked on a trip to Florida to have dinner with the princesses. Jayci turned three in July and what better way to celebrate her birthday than to do it in Disney World. Yes we went to central Florida in the middle of summer. It was sweltering hot but we all did pretty well with the heat, Jayci included. Heat as you all may know has just as an adverse affect on CHD kids as cold does. She was indeed more out of breath than usual and we had to closely monitor her fluid intake to prevent dehydration however with having the passes that got us to the front of the line at each ride we were able to get through the parks in the morning and spend the afternoon at the water park at GKTW Village. Give Kids The World Village was a wonderful place geared towards the needs of special health needs children where we stayed while in Florida. It was minutes from the parks and just a great location to be. All four of the kiddos loved it there and they were all spoiled during our stay. It finally came time for Jayci's birthday dinner with the princesses and what a dinner it was. Jayci didn't care much to eat what she had ordered just about whether Cinderella was coming to her table. And finally Cinderella appeared through the door and Jayci was in awe of her. Cinderella knelt down to give Jayci a hug and as she talked with Jayci a glow came across her face like none other I've seen before. It was a fantastic sight to see and one that will forever hold a special place in my memories. From that day on Jayci has been in princess mode. Everything she sees or gets must be princess approved... While 2010 was hospital free I am sorry to say that 2011 will not be. We are in the middle of planning a surgery for the summer... It was very nice to be hospital free for one whole year. She did a lot of growing and playing like a "normal" child would, however it just makes the idea of another surgery that much harder to swallow. I think the "new" surgeon is thinking of attempting the Unifocalization/VSD closure. The VSD closure is what scares me. She will have blood flowing where it should be flowing not where God had intended when her heart was forming. This will cause pressures inside the chambers of her heart and resistance in her lungs. Again this simplest phase of her repair journey scares me...

Pro-Log

I started this blog almost two years ago and found it easier to update the carepage instead, however lately I feel the need to blog instead of the carepage. This need to blog is met with many more features and "bells and whistles" if you will, that carepages just cannot offer. For those of you who wish to still keep up with Jayci through carepages I will be doing that as well. This Blog will be more about my family and how we all cope in our own unique way with Jayci's illness. The carepage is great don't get me wrong but for those of you who are interested in the whole story please feel free to follow along. I expect to post here at least once a week...HAHAHA hopefully.